As a chronic disease patient, you can make a difference in the fight against chronic disease and related conditions with this free app.
IN THE PRESS
About PatientSpot
As a chronic disease patient, you can make a difference in the fight against chronic disease and related conditions with this free app.
PatientSpot puts your health information in your hands! Track your symptoms, treatments and other health data from your computer or smartphone.
Overtime you will better understand changes in your condition and be able to work with your doctor to make informed treatment decisions.
Join PatientSpot
The Global Healthy Living Foundation regularly collaborates with chronic disease researchers and partners to pursue research through the PatientSpot research registry, a non-profit, patient-inspired and patient-managed research initiative.
THE NUMBERS
45,061
Patients
64,381
Reported Treatments
846,976
Reported Outcomes
Consider joining today. Transform your story into powerful clues that will help researchers develop better treatments and, ultimately, a cure.
For All Devices
Track your symptoms and view results wherever it’s convenient for you. PatientSpot is available for multiple devices and platforms —from desktop to smartphone to tablet.
The people behind PatientSpot
In 2014, Arthritis Power (now known as PatientSpot) was created as a patient-powered research network (PPRN) with initial support from the Patient-Centered Outcomes Research Institute (PCORI) and in partnership with the University of Alabama, Birmingham.
In 2023, Arthritis Power became PatientSpot to include and serve chronic disease patients.
Shilpa Venkatachalam
PhD, MPH, Principal Investigator
Shilpa Venkatachalam, PhD, MPH, is the Director, Patient-Centered Research Operations and Ethical Oversight and President of GHLF North Africa, as well as Principal Investigator of PatientSpot, an omni disease research registry. She oversees several research projects including a collaborative research group called the Autoimmune Research Collaborative (ARC) and the GHLF PatientSpot research registry.
To read more about Dr. Venkatachalam: click here
Jeff Curtis
MD, MS, MPH, Co-Principal Investigator
Jeffrey R Curtis, M.D. is a rheumatologist and epidemiologist focused on the efficacy, comparative effectiveness, and safety of the medications used to treat inflammatory disease. He is a Professor of Medicine in the Division of Clinical Immunology and Rheumatology at the University of Alabama at Birmingham (UAB). He is the Co-Principle Investigator of PatientSpot, an omni disease research registry focused on chronic diseases. He has been a member of the Center for Disease Control (CDC) Advisory Committee on Immunization Practices (ACIP) Herpes Zoster workgroup, and in 2015, he was appointed as a member to the FDA Arthritis Advisory Committee.
To learn more about Dr. Curtis: click here
PatientSpot Core Features
From tracking your symptoms and medications to sharing your experience, PatientSpot is there for you.
Share
Share results with family / caregivers / healthcare professionals
Research Opportunities
Participate in paid / unpaid surveys and studies
Education
Access to educational resources about your condition
Medications
Enter/Keep track of treatments
Tracking
Track your health with customized assessments
Analytics
View results over time / see how symptoms are changing / identify causes of symptom changes
In The Media
PatientSpot (formerly known as Arthritis Power) has been featured in many notable media outlets.
Frequently Asked Questions
Please keep in mind that throughout your use of PatientSpot, you can provide feedback or ask questions at any time by contacting us. We’ve listed some frequently asked questions here for your convenience.
What conditions are included in the registry?
If you are living with any chronic condition, please consider registering for PatientSpot, our omni disease research registry.
Together we can help advance our understanding of all chronic diseases.
Will PatientSpot keep my information confidential?
Yes. The information you provide will only be used for tracking trends among patients. The only time your information would be shared with identifying data is if we are linking the data with a health institution and we want to ensure the correct person’s data is being used. Besides this, your info will not be connected with you in any way.
Is it required for me to give my Social Security number (SSN)?
No! In the event that we do ask for it, it is completely optional. It is not necessary to provide your SSN to participate in PatientSpot.
Can PatientSpot make health recommendations for me?
Unfortunately, no. The purpose of Patientspot is to track your health for both your benefit and the benefit of research. However, we will let you know about research findings to keep you up-to-date on what scientists are learning from the data you are contributing so that you can work with your doctor on your health decision making.
Contact Us
Get in touch with our team and we will assist you with any questions you may have!
