Digital Tracking of Rheumatoid Arthritis Longitudinally (Digital) Using Biosensor and Patient-Reported Outcome Data: Protocol for a Real-World Study

By The ArthritisPower TeamNovember 2, 2021December 9th, 2021Rheumatoid Arthritis

This is a proposal for a study to see if wearable digital technology that enables the regular passive collection of patients’ biometric and activity data is strongly related to data captured by patient-reported outcome measures. Participants in this study will be observed for a period of 6 months and will be registrants of ArthritisPower. The results of this study are expected to be published by the end of 2021.

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PatientSpot registry infrastructure was funded through a Patient-Centered Outcomes Research Institute Award (PCORI Contract Number PPRN-1306-04811). PatientSpot (formerly known as Arthritis Power) was jointly developed by the nonprofit Global Healthy Living Foundation (GHLF), its associated CreakyJoints arthritis patient community, and rheumatology researchers at the University of Alabama at Birmingham (UAB). We reserve the right to change and add sponsors and partner organizations and we also reserve the right to change placement of text on the page. Created by CreakyJoints® patient community in collaboration with patient advocates at Global Healthy Living Foundation (GHLF) and researchers at the University of Alabama at Birmingham (UAB), Arthritis Power (now PatientSpot)’s past participation in PCORnet®, the National Patient-Centered Clinical Research Network, was supported through multiyear, multimillion-dollar Patient-Centered Outcomes Research Institute funding awards [PPRN-1306-04811]. Global Healthy Living Foundation (GHLF), the parent organization of PatientSpot, receives grants, sponsorships and contracts from pharmaceutical manufacturers and private foundations. A full list of GHLF funders is publicly available here: https://www.ghlf.org/our-partners.